Data Protection in Research Practice - A Tutorial
Since May 2018, the GDPR (General Data Protection Regulation) has been in force in all European member states. This affects not only the private sector, but also the academic one.
In the course of an academic career, you will most certainly collect and process personal data from third parties - be it in the context of your research or because you are organizing a conference, where you have to collect personal data of the attendees. This makes it especially important - from a legal and an ethical perspective - that the data processing is done in a GDPR-compliant manner.
To help you with this, we would like to introduce you to the most important terms and concepts of the GDPR. We will also show you the ELDAH Consent Form Wizard, a tool that allows you to create GDPR-compliant consent forms for personal data collection in a research context, which you can adapt to your particular research purpose.
Key terms in the GDPR
In the first part of the video-series, we will take a closer look at some general information about the GDPR. We will clarify what the GDPR applies to, what “data processing” means in the sense of the GDPR and what data categories it actually concerns (keywords: personal data and sensitive data). We will also get to know two ways of handling data that help to increase data protection - anonymization and pseudonymization of data.
Principles, rights and obligations laid out in the GDPR
In this part of the video-series we will look at 7 “principles” which allow for - and are obligatory for - the processing of personal data according to the GDPR and will learn what each of these principles mean. Furthermore, we will look at key roles in the data processing context addressed in the GDPR and their rights and obligations. (Click here to download the slides used in the video)
The GDPR in Science and Research
Now that the first two videos have clarified the most important terms and concepts, we will focus in this part on the impact of the GDPR on science and research, and we will also learn about the exemptions created in the GDPR in the context of public archiving and research. (Click here to download the slides used in the video)
How to easily create GDPR-compliant consent forms - The ELDAH Consent Form Wizard
After discussing the most important terms and concepts of the GDPR and learning about the exemptions for science and research, the time has come to approach this topic more practice-oriented.
Therefore, in this video, we will take a closer look at the ELDAH Consent Form Wizard, developed by the DARIAH-EU’s working group for “Ethics and legality in the digital arts and humanities” (ELDAH). This step-by-step guide will show you how you can use this tool to easily create consent forms tailored to specific research purposes.